Sickle Cell

Data Collection Program

in Wisconsin

The Sickle Cell Data Collection Program in Wisconsin (SCDC-WI) is a statewide surveillance program that gathers data from different sources to create a centralized hub of information to better inform healthcare practices and policies for individuals with SCD living in Wisconsin.

What is

Sickle Cell

Disease(SCD)?

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SCDC-WI Data

The Sickle Cell Data Collection Wisconsin (SCDC-WI) program utilizes data from Newborn Screening, Medicaid Data, Wisconsin Health Information Organization (WHIO) Data, Vital Records, Wisconsin Hospital Association (WHA), electronic health records data from Froedtert Hospital and Children’s Wisconsin Clinical Data.

SCDC – WI

The collection of Sickle Cell data in Wisconsin plays a crucial role in understanding the prevalence and impact of Sickle Cell Disease (SCD) within the state’s population. By gathering detailed information on the number of cases, demographics, treatment outcomes, and complications, healthcare providers can tailor interventions to the community’s specific needs. Role of SCDC-WI, this data collection helps identify health disparities, guiding policymakers in allocating resources effectively. It enables researchers to investigate trends, develop targeted therapies, and engage in prevention strategies, ultimately improving the care and quality of life for those living with SCD in Wisconsin.

SCDC - WI Communications

SCDC-WI strives to provide effective communication to its various stakeholders through a wide variety of initiatives.

Infographics

Publications

Conference Presentations